Sophie s mishap (Belgium)


Ca y est mon site est ouvert ! Bienvenue !

With an energy and a legendary tenacity, Sophie tells her tumultuous adventures. She always knew about her handicap. She was born with a lysosomal illness, the Scheie MPS type 1. For Sophie, it concerns an articular problem.

Sophie lived with daily physiotherapy since the age of 6. In may 2003, she underwent a cardiac intervention and in 1985-1986 she underwent two interventions of cornea graft for each eye.

During primary school, she must follow the special education. But my mother didn’t agree. By the way, says Sophie, I don’t understand why a physical problem should stop somebody to go to school. However, it really wasn’t easy, she recognizes. For example, her articular problems frequently stopped her from taking rapidly notes.Sophie used to secretly record her lessons. Particular lessons helped her to make up for her the lost time.
In 1995, her will to win was finally rewarded: she received her account graduate. After, Sophie faced the grim work environment with 4 years of unemployment. After sending many curriculum vitae, a 6 months long stage that she found alone and 7 months of voluntary work at Oxfam, she found an employment in September 1999, a real employement in the red cross until November 2005 due to restructuration.

Since 2003, Sophie followed a substitution enzyme treatment given by a pharmaceutical company. This treatment stabilized the evolution of her illness. Actually, she leads a normal life as an independent woman with articular therapy and cardiac revalidation. Since 2004, Sophie chats on msn with other patients who have her same illness.
With her rhythm, she started again cycling, tennis, skiing. In September 2006, Sophie underwent the intervention of the carpal canal to the left hand. This surgery enables her to recover an inflection of the fingers. In April 2007, she was operate of the heart, but she lives normally with her physiotherapist and swimming. In spring, she intends to remake bicycle.

Sophie with the senator October 2006

During 4 years, we did not leave on holiday by lack of information. Holidays are sacred. In July-August 2007, we could leave on holiday with the enzymatic treatment substitution. It is enough to make the request a long time before to ask your specialist doctor who will make the formalities necessary to leave to the foreign countries E112. In 2008, She make the carpal canal intervention for the right hand.
For a few years, she has the support and the encouragements of a team of formidable doctors that she appreciates enormously. To our time, we had any breadwinner and it existed any Association. Nowadays,it doesn’t exist association for the lysosomales diseases in Belgium. Extrait du journal "Le Soir"

sophie.mps@gmail.com